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Full Schedule
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Thu, Jun 4
Fri, Jun 5
Sat, Jun 6
Sun, Jun 7
Full Schedule
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Thursday, June 4, 2026
7:00 AM - 8:00 AM
ET
Grant Writing Institute (GWI) Registration and Breakfast
7:00 AM - 8:00 AM
ET
Grant Writing Institute (GWI) Registration and Breakfast
Location: 253AB
8:10 AM - 8:20 AM
ET
GWI Welcome & Introduction
8:10 AM - 8:20 AM
ET
GWI Welcome & Introduction
Location: 253AB
Speaker:
Lanetta Bronte, MD, MPH, MSPH
– The Foundation for Sickle Cell Disease Research
8:20 AM - 8:35 AM
ET
From Concept to Funding: Real-World Grant Testimonials
8:20 AM - 8:35 AM
ET
From Concept to Funding: Real-World Grant Testimonials
Location: 253AB
8:35 AM - 9:00 AM
ET
Learning to Read Grant Applications
8:35 AM - 9:00 AM
ET
Reading Between the Lines of Grant Applications
Location: 253AB
Speaker:
Mary Bentley LaMar, BA
– Sickle Cell Association of New Jersey
8:35 AM - 9:00 AM
ET
Reading Between the Lines of Grant Applications
8:35 AM - 9:00 AM
ET
Reading Between the Lines of Grant Applications
Location: 253AB
9:00 AM - 9:15 AM
ET
Building a High-Merit Application: Strategy & Structure
9:00 AM - 9:15 AM
ET
Building a High-Merit Application: Strategy & Structure
Location: 253AB
Speaker:
Wally R. Smith, MD
– Virginia Commonwealth University
9:15 AM - 10:00 AM
ET
Sustaining Innovation: Funding Strategies for Long-Term Impact
9:15 AM - 10:00 AM
ET
Sustaining Innovation: Funding Strategies for Long-Term Impact
Location: 253AB
10:00 AM - 10:15 AM
ET
Coffee Break
10:00 AM - 10:15 AM
ET
Coffee Break
Location: 253AB
10:15 AM - 11:00 AM
ET
Compliance Essentials: From Notice of Award to Closeout
10:15 AM - 11:00 AM
ET
Compliance Essentials: From Notice of Award to Closeout
Location: 253AB
11:00 AM - 11:40 AM
ET
Psychological Safety and the Triad
11:00 AM - 11:40 AM
ET
The Academic-Community-Patient Triad: Creating Psychological Safety
Location: 253AB
11:40 AM - 12:00 PM
ET
Mentor
11:40 AM - 12:00 PM
ET
Mentor
Location: 253AB
Speaker:
Betty Pace, MD
– Augusta University
12:05 PM - 1:05 PM
ET
Lunch
12:05 PM - 1:05 PM
ET
Lunch
Location: 253AB
1:00 PM - 5:00 PM
ET
Update on Stroke Prevention Strategies in Children with Sickle Cell Disease
1:00 PM - 5:00 PM
ET
Update on Stroke Prevention Strategies in Children with Sickle Cell Disease
Location: 250AB
Chair:
Philipp Aldana, MD
– Nemours Children’s Health, Mayo Clinic College of Medicine and Science, Wolfson Chidren’s Hospital Jacksonvile.
1:05 PM - 3:15 PM
ET
Mentor + Mentee Presentation Guidelines & Pairing Overview
1:05 PM - 3:15 PM
ET
Mentor + Mentee Presentation Guidelines & Pairing Overview
Location: 253AB
3:15 PM - 3:30 PM
ET
Coffee Break
3:15 PM - 3:30 PM
ET
Coffee Break
Location: 253AB
3:30 PM - 5:30 PM
ET
The Grant Lab: Presentations & Real-Time Review
3:30 PM - 5:30 PM
ET
The Grant Lab: Presentations & Real-Time Review
Location: 253AB
5:30 PM - 5:45 PM
ET
Closing Reflections & Next Steps
5:30 PM - 5:45 PM
ET
Closing Reflections & Next Steps
Location: 253AB
Friday, June 5, 2026
9:30 AM - 11:00 AM
ET
Special Symposium: Advancing Biomarkers in Sickle Cell Disease: Regulatory Pathways, Clinical Integration & Patient-Centered Endpoints
Chair:
Caterina Minniti, MD
– Albert Einstein College of Medicine, Bronx, NY, USA
9:30 AM - 11:00 AM
ET
Insights into Drug Development in Sickle Cell Disease
Location: Atlantic D
Chair:
Caterina Minniti, MD
– Albert Einstein College of Medicine, Bronx, NY, USA
9:35 AM - 9:50 AM
ET
Biomarkers as Endpoints in Sickle Cell Disease: What Are They and Why Are They Important?
Location: Atlantic D
Speaker:
Kenneth I. Ataga, MD
– UTHSC Center for Sickle Cell Disease, Memphis, TN, USA
9:50 AM - 10:05 AM
ET
FDA 101: Pathways to Biomarker Approval: A Strategy
Location: Atlantic D
Speaker:
Donna Whyte-Stewart
10:05 AM - 10:15 AM
ET
Patient-Centered Endpoints in Sickle Cell Disease
10:15 AM - 10:35 AM
ET
Industry Sponsor Perspectives Panel
Location: Atlantic D
Panelist:
Gregory J. Kato, MD
– CSL Behring
10:35 AM - 10:55 AM
ET
Panel Discussion & Audience Q&A
Location: Atlantic D
11:30 AM - 11:45 AM
ET
Welcome Address: The State of Sickle Cell Disease in the Golden Age & Celebrating 20 Years of The Symposium
11:30 AM - 11:45 AM
ET
Welcome Address: The State of Sickle Cell Disease in the Golden Age & Celebrating 20 Years of The Symposium
Location: Atlantic D
Speaker:
Lanetta Bronte, MD, MPH, MSPH
– The Foundation for Sickle Cell Disease Research
11:45 AM - 11:50 AM
ET
Introduction to the Access to Care Keynote Presentation
11:45 AM - 11:50 AM
ET
Introduction to the Access to Care Keynote Presentation
Location: Atlantic D
Speaker:
Kayvan Amini, DO, FACC
– South Florida Cardiology Consultants
11:45 AM - 12:45 PM
ET
Access to Care Keynote Presentation: Research and Real-World Impact in Sickle Cell Disease
11:50 AM - 12:45 PM
ET
Access to Care Keynote Presentation: Research and Real-World Impact in Sickle Cell Disease
Location: Atlantic D
Presenter:
Christopher Cogle, MD
– Florida Medicaid
12:45 PM - 1:15 PM
ET
Practical Tips to Make Your Clinical Trial Successful - for Participants, Clinical Research Staff and Investigators
12:45 PM - 1:15 PM
ET
Practical Tips to Make Your Clinical Trial Successful - for Participants, Clinical Research Staff and Investigators
Location: Atlantic D
Chair:
Susan P. Perrine, MD, SM
– Boston University Chobanian & Avedisian School of Medicine
Co-Chair:
Qin C. Ryan, MD, PhD
1:15 PM - 1:45 PM
ET
Exhibit Hall Welcome Coffee Break
1:15 PM - 1:45 PM
ET
Exhibit Hall Welcome Coffee Break
1:45 PM - 3:15 PM
ET
Historic Landmarks in Research and Care of Patients with Sickle Cell Disease
Panelist:
Wally R. Smith, MD
– Virginia Commonwealth University
Panelist:
Adetola Kassim, M.B.B.S, MS, FACP
– Vanderbilt University Medical Center
Panelist:
Sophie Lanzkron, MD, MHS
– Thomas Jefferson University
1:45 PM - 3:15 PM
ET
Historic Landmarks in Research and Care of Patients with Sickle Cell Disease
Location: Atlantic D
Panelist:
Wally R. Smith, MD
– Virginia Commonwealth University
Panelist:
Adetola Kassim, M.B.B.S, MS, FACP
– Vanderbilt University Medical Center
Panelist:
Sophie Lanzkron, MD, MHS
– Thomas Jefferson University
2:10 PM - 2:30 PM
ET
Rewriting Blood: The Genetic Reset of Sickle Cell Disease Through Hematopoietic Stem Cell Transplant
Location: Atlantic D
Panelist:
Adetola Kassim, M.B.B.S, MS, FACP
– Vanderbilt University Medical Center
3:20 PM - 4:20 PM
ET
The Patient Symposium: Empowering Patients to Advance Sickle Cell Policy
3:20 PM - 4:20 PM
ET
The Patient Symposium: Empowering Patients to Advance Sickle Cell Policy
Location: Atlantic D
Chair:
Ashley Valentine, MRes
– Sick Cells
Co-Chair:
Melissa Akinlawon, MA
– Sick Cells
4:20 PM - 4:50 PM
ET
Break
4:20 PM - 4:50 PM
ET
Break
4:50 PM - 6:15 PM
ET
Investigational New Drug, Device and Therapeutics Symposium
4:50 PM - 6:15 PM
ET
Investigational New Drug, Device and Therapeutics Symposium
Location: Atlantic D
Chair:
Patrick C. Hines, MD, PhD
– Wayne State University School of Medicine, Detroit, MI, USA
6:15 PM - 7:30 PM
ET
Welcome Reception and Poster Session
6:15 PM - 7:30 PM
ET
Welcome Reception and Poster Session
Location: Exhibit Hall
7:30 PM - 9:30 PM
ET
Adult, Child, and Caregiver Town Hall & Dinner Panel (RSVPs Required, intended for SCD patients and families)
7:30 PM - 9:30 PM
ET
Adult, Child, and Caregiver Town Hall & Dinner Panel (RSVPs Required, intended for SCD patients and families)
Location: Atlantic D
Chair:
Nehemie Noel, MS-HCRM, BSHA, RN, CHW
– Crisis 2 Crown International Inc.
8:30 PM - 5:30 PM
ET
Speaker Ready Room
Chair:
Caterina Minniti, MD
– Albert Einstein College of Medicine
8:30 PM - 5:30 PM
ET
Speaker Ready Room
Location: 253C
Saturday, June 6, 2026
7:00 AM - 8:00 AM
ET
Attendee Breakfast
7:00 AM - 8:00 AM
ET
Attendee Breakfast
8:15 AM - 8:25 AM
ET
Welcome From The 2026 Scientific Chair
8:15 AM - 8:25 AM
ET
Welcome From The 2026 Scientific Chair
Speaker:
Cheedy Jaja, PHD, MPH, MSN, PMHNP-BC, APRN, FAAN
– University of South Florida
8:25 AM - 9:40 AM
ET
Top Abstract Oral Presentations
8:25 AM - 9:40 AM
ET
Top Abstract Oral Presentations
Location: Atlantic D
8:30 AM - 5:30 PM
ET
Speaker Ready Room
8:30 AM - 5:30 PM
ET
Speaker Ready Room
Location: 253C
9:45 AM - 10:45 AM
ET
Scientific Keynote Presentation: Sickle Cell Disease as a Molecular Paradigm, from Discovery to Presicion Medicine
9:45 AM - 10:45 AM
ET
Scientific Keynote Presentation: Sickle Cell Disease as a Molecular Paradigm, from Discovery to Presicion Medicine
Location: Atlantic D
Keynote Speaker:
Betty Pace, MD
– Augusta University
10:45 AM - 11:00 AM
ET
Advances in Cardiopulmonary Complications of Sickle Cell Disease.
10:45 AM - 11:00 AM
ET
Advances in Cardiopulmonary Complications of Sickle Cell Disease.
Speaker:
Elizabeth S. Klings, MD
– Boston University School of Medicine
11:00 AM - 12:30 PM
ET
Educational Session on Basic Science, Multi-Omics, and Red Cell Research: Historical Perspectives vs. New Initiatives in Sickle Cell Disease
11:00 AM - 12:30 PM
ET
Educational Session on Basic Science, Multi-Omics, and Red Cell Research: Historical Perspectives vs. New Initiatives in Sickle Cell Disease
Speaker:
Lakshmanan Krishnamurti
– Yale Pediatric Hematology & Oncology
11:00 AM - 12:30 PM
ET
Educational Session on Behavioral and Mental Health in Sickle Cell Disease
11:00 AM - 12:30 PM
ET
Educational Session on Behavioral and Mental Health in Sickle Cell Disease
Chair:
Kofi A. Anie, PhD
– London North West University Healthcare NHS Trust and Imperial College London
11:00 AM - 12:30 PM
ET
Educational Session on Genomics, and Bioethics in Sickle Cell Disease
11:00 AM - 12:30 PM
ET
Educational Session on Genomics, and Bioethics in Sickle Cell Disease
Chair:
Vence L. Bonham,, Jr., JD
– Meharry Medical College
11:00 AM - 12:30 PM
ET
Educational Session on Guidelines and Clinical Endpoints in Sickle Cell Disease
11:00 AM - 12:30 PM
ET
Educational Session on Guidelines and Clinical Endpoints in Sickle Cell Disease
Chair:
Caterina Minniti, MD
– Albert Einstein College of Medicine
Speaker:
Patricia Oneal, MD
– Food and Drug Administration
Speaker:
Tonya Wroblewski
12:30 PM - 1:30 PM
ET
Exhibit Hall Lunch
12:30 PM - 1:30 PM
ET
Exhibit Hall Lunch
1:30 PM - 2:00 PM
ET
20 Years of Scientific Advancement in Sickle Cell Disease
1:30 PM - 2:00 PM
ET
20 Years of Scientific Advancement in Sickle Cell Disease
Location: Atlantic D
Speaker:
Solomon Ofori-Acquah
2:00 PM - 4:00 PM
ET
Dr. Kwaku "KOF" Ohene-Frempong East Meets West Global Sickle Cell Disease Symposium
2:00 PM - 4:00 PM
ET
Dr. Kwaku "KOF" Ohene-Frempong East Meets West Global Sickle Cell Disease Symposium
Location: Atlantic D
4:00 PM - 4:30 PM
ET
Exhibit Hall Coffee Break
4:00 PM - 4:30 PM
ET
Exhibit Hall Coffee Break
4:30 PM - 5:30 PM
ET
The Nursing Symposium - Advanced Practice Providers as Sickle Cell Specialists: What are the most effective models of care?
4:30 PM - 5:30 PM
ET
The Nursing Symposium - Advanced Practice Providers as Sickle Cell Specialists: What are the most effective models of care?
Location: Atlantic D
Chair:
Cheryl A. Brewer, PhD, MSN, RN
– Duke University, School of Nursing
5:30 PM - 6:30 PM
ET
Break
5:30 PM - 6:30 PM
ET
Break
6:30 PM - 8:30 PM
ET
FSCDR's Presidential Reception - All Invited!
6:30 PM - 8:30 PM
ET
FSCDR's Presidential Reception - All Invited!
Sunday, June 7, 2026
7:00 AM - 8:00 AM
ET
Attendee Breakfast
7:00 AM - 8:00 AM
ET
Attendee Breakfast
8:15 AM - 8:25 AM
ET
Welcome from the 2027 Scientific Chair
8:15 AM - 8:25 AM
ET
Welcome from the 2027 Scientific Chair
Location: Atlantic D
Speaker:
Charity I. Oyedeji, MD
– Duke
8:25 AM - 8:40 AM
ET
Update on Stroke Prevention Strategies in Children with Sickle Cell Disease
8:25 AM - 8:40 AM
ET
Update on Stroke Prevention Strategies in Children with Sickle Cell Disease
Location: Atlantic D
Chair:
Philipp Aldana, MD
– Nemours Children’s Health, Mayo Clinic College of Medicine and Science, Wolfson Chidren’s Hospital Jacksonvile.
8:30 AM - 2:30 PM
ET
Speaker Ready Room
8:30 AM - 2:30 PM
ET
Speaker Ready Room
Location: 253C
8:40 AM - 9:40 AM
ET
2026 FSCDR Sickle Cell Pain Symposium: A Holistic View of Pain in Sickle Cell Disease: Mechanisms and Treatment Approaches, Session 1
8:40 AM - 9:40 AM
ET
2026 FSCDR Sickle Cell Pain Symposium: A Holistic View of Pain in Sickle Cell Disease: Mechanisms and Treatment Approaches, Session 1
Location: Atlantic D
8:45 AM - 9:00 AM
ET
Overview of Pain in Sickle Cell Disease and Goals of the Sickle Cell Disease Pain Pilot Program
Location: Atlantic D
Chair:
Kalpna Gupta, n/a
– UC Irvine, Division of Hematology/Oncology, Department of Medicine
9:00 AM - 9:10 AM
ET
Erythrocyte GABARAPs as Novel Therapeutic Targets for Kidney Pain in Sickle Cell Disease
Location: Atlantic D
Speaker:
Jagadeesh Ramasamy, PhD
9:20 AM - 9:30 AM
ET
Spinal Mechanisms and Pain in Sickle Cell Disease
Location: Atlantic D
Speaker:
Mihir Gupta, MD
– Yale University
9:30 AM - 9:40 AM
ET
Interaction Between Kidney Injury and Pain Sensitivity in Sickle Cell Disease
Location: Atlantic D
Speaker:
Samit Ghosh, PhD
– Vascular Medicine Institute, University of Pittsburgh
9:40 AM - 10:00 AM
ET
Exhibit Hall Coffee Break
9:40 AM - 10:00 AM
ET
Exhibit Hall Coffee Break
10:00 AM - 10:20 AM
ET
2026 FSCDR Sickle Cell Pain Symposium: A Holistic View of Pain in Sickle Cell Disease: Mechanisms and Treatment Approaches, Session 2
10:20 AM - 10:30 AM
ET
From Blood Flow to Brain Networks: Neuroimaging Insights into Pain in Sickle Cell Disease
Location: Atlantic D
Speaker:
Daniel M. Sop, PhD, MS
– Virginia Commonwealth University
10:00 AM - 11:20 AM
ET
2026 FSCDR Sickle Cell Pain Symposium: A Holistic View of Pain in Sickle Cell Disease: Mechanisms and Treatment Approaches, Session 2
10:00 AM - 11:20 AM
ET
2026 FSCDR Sickle Cell Pain Symposium: A Holistic View of Pain in Sickle Cell Disease: Mechanisms and Treatment Approaches, Session 2
Location: Atlantic D
11:00 AM - 11:30 AM
ET
2026 FSCDR Sickle Cell Pain Symposium: A Holistic View of Pain in Sickle Cell Disease: Mechanisms and Treatment Approaches, Q&A
11:00 AM - 11:30 AM
ET
2026 FSCDR Sickle Cell Pain Symposium: A Holistic View of Pain in Sickle Cell Disease: Mechanisms and Treatment Approaches, Q&A
Location: Atlantic D
Chair:
Wally R. Smith, MD
– Virginia Commonwealth University
12:00 PM - 1:00 PM
ET
Foundation Keynote Presentation: The Hero's Journey
12:00 PM - 1:00 PM
ET
Foundation Keynote Presentation: The Hero's Journey
Location: Atlantic D
Keynote Speaker:
Viola Davis
1:00 PM - 1:30 PM
ET
Viola Davis Meet & Greet (Ticketed Event)
1:00 PM - 1:30 PM
ET
Viola Davis Meet & Greet (Ticketed Event)
Keynote Speaker:
Viola Davis
1:00 PM - 2:00 PM
ET
Exhibit Hall Lunch
1:00 PM - 2:00 PM
ET
Exhibit Hall Lunch
2:00 PM - 2:15 PM
ET
Journavx (Suzetrigine) and Emerging Nonopioid Approaches to Acute Sickle Cell Pain
2:00 PM - 2:15 PM
ET
Journavx (Suzetrigine) and Emerging Nonopioid Approaches to Acute Sickle Cell Pain
Location: Atlantic D
Speaker:
Hyeseon Levitsky, PharmD
– Larkin University
2:15 PM - 3:45 PM
ET
Oral Abstract Breakout Session I Basic Science / Translational
2:15 PM - 3:45 PM
ET
Oral Abstract Breakout Session I Basic Science / Translational
Location: 250AB
2:15 PM - 3:45 PM
ET
Oral Abstract Breakout Session I Clinical Trials
2:15 PM - 3:45 PM
ET
Oral Abstract Breakout Session I Clinical Trials
Location: Atlantic D
2:15 PM - 3:45 PM
ET
Oral Abstract Breakout Session I Health Services
2:15 PM - 3:45 PM
ET
Oral Abstract Breakout Session I Health Services
Location: 253AB
4:30 PM - 6:00 PM
ET
Oral Abstract Breakout Session II Clinical / Translational
4:30 PM - 6:00 PM
ET
Oral Abstract Breakout Session II Clinical / Translational
Location: Atlantic D
4:30 PM - 6:00 PM
ET
Oral Abstract Breakout Session II Health Services/Quality Improvement
4:30 PM - 6:00 PM
ET
Oral Abstract Breakout Session II Health Services/Quality Improvement
Location: 250AB
4:30 PM - 6:00 PM
ET
Oral Abstract Breakout Session II Psychosocial
4:30 PM - 6:00 PM
ET
Oral Abstract Breakout Session II Psychosocial
Location: 250 AB