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Friday, June 5, 2026
8:30 AM - 5:30 PM
ET
Speaker Ready Room
Chair:
Caterina Minniti, MD
– Albert Einstein College of Medicine
8:30 AM - 5:30 PM
ET
Speaker Ready Room
Location: 253C
8:30 AM - 7:30 PM
ET
Registration Open
8:30 AM - 7:30 PM
ET
Registration Open
Location: Level 2 Prefunction - East Building
9:30 AM - 11:00 AM
ET
Special Symposium: Advancing Biomarkers in Sickle Cell Disease: Regulatory Pathways, Clinical Integration & Patient-Centered Endpoints
Chair:
Caterina P. Minniti, MD
– Albert Einstein College of Medicine, Bronx, NY, USA
9:30 AM - 11:00 AM
ET
Special Symposium: Advancing Biomarkers in Sickle Cell Disease: Regulatory Pathways, Clinical Integration & Patient-Centered Endpoint
Location: Atlantic D
Chair:
Caterina P. Minniti, MD
– Albert Einstein College of Medicine, Bronx, NY, USA
9:35 AM - 9:45 AM
ET
Biomarkers as Endpoints in Sickle Cell Disease: What Are They and Why Are They Important?
Location: Atlantic D
Speaker:
Patrick C. Hines, MD, PhD
– Wayne State University School of Medicine, Detroit, MI, USA
9:45 AM - 10:00 AM
ET
FDA 101: Pathways to Biomarker Qualification & Approval
Location: Atlantic D
Speaker:
Donna Whyte-Stewart, MD, ScM
– US FDA
10:00 AM - 10:10 AM
ET
Patient-Centered Endpoints in Sickle Cell Disease
Location: Atlantic D
Speaker:
Crawford J. Strunk, MD
– Cleveland Clinic
10:10 AM - 10:20 AM
ET
Chronic Pain as a Clinical Trial Endpoint in Sickle Cell Disease
Location: Atlantic D
Speaker:
Wally R. Smith, M.D.
– Virginia Commonwealth University
10:15 AM - 10:35 AM
ET
Industry Sponsor Perspectives Panel
Location: Atlantic D
Moderator:
Gregory J. Kato, M.D.
– CSL Behring
Speaker:
Michael Callaghan, M.D.
– Agios Pharmaceuticals
Speaker:
Thomas Winkler, M.D.
– Fulcrum Therapeutics, Cambridge, MA, USA
Speaker:
E. Leila Jerome Clay, M.D., MCTS, FAAP
– Novo Nordisk Inc.
10:35 AM - 10:55 AM
ET
Panel Discussion & Audience Q&A
Location: Atlantic D
11:30 AM - 11:45 AM
ET
Welcome Address: The State of Sickle Cell Disease in the Golden Age & Celebrating 20 Years of The Symposium
11:30 AM - 11:45 AM
ET
Welcome Address: The State of Sickle Cell Disease in the Golden Age & Celebrating 20 Years of The Symposium
Location: Atlantic D
Speaker:
Lanetta Bronte, M.D., MPH, MSPH
– Foundation for Sickle Cell Disease Research
11:45 AM - 11:50 AM
ET
Introduction to the Access to Care Keynote Presentation
11:45 AM - 11:50 AM
ET
Introduction to the Access to Care Keynote Presentation
Location: Atlantic D
Speaker:
Kayvan Amini, DO, FACC
– South Florida Cardiology Consultants
11:45 AM - 12:45 PM
ET
Access to Care Keynote Presentation: Research and Real-World Impact in Sickle Cell Disease
11:50 AM - 12:45 PM
ET
Access to Care Keynote Presentation: Research and Real-World Impact in Sickle Cell Disease
Location: Atlantic D
Presenter:
Christopher Cogle, M.D.
– Florida Medicaid
12:45 PM - 1:15 PM
ET
Practical Tips to Make Your Clinical Trial Successful - for Participants, Clinical Research Staff and Investigators
12:45 PM - 1:15 PM
ET
Practical Tips to Make Your Clinical Trial Successful - for Participants, Clinical Research Staff and Investigators
Location: Atlantic D
Speaker:
Kevin Kuo, M.D.
– Red Blood Cell Disorders Program, Toronto General Hospital
1:15 PM - 1:45 PM
ET
Exhibit Hall Welcome Coffee Break
1:15 PM - 1:45 PM
ET
Exhibit Hall Welcome Coffee Break
Location: Atlantic C
1:45 PM - 3:15 PM
ET
Historic Landmarks in Research and Care of Patients with Sickle Cell Disease
Panelist:
Wally R. Smith, M.D.
– Virginia Commonwealth University
Panelist:
Adetola Kassim, M.B.B.S, M.S., FACP
– Vanderbilt University Medical Center
Panelist:
Sophie Lanzkron, M.D., MHS
– Thomas Jefferson University
Panelist:
Kenneth I. Ataga, MD
– UTHSC Center for Sickle Cell Disease, Memphis, TN, USA
1:45 PM - 3:15 PM
ET
Historic Landmarks in Research and Care of Patients with Sickle Cell Disease
Location: Atlantic D
Panelist:
Wally R. Smith, M.D.
– Virginia Commonwealth University
Panelist:
Adetola Kassim, M.B.B.S, M.S., FACP
– Vanderbilt University Medical Center
Panelist:
Sophie Lanzkron, M.D., MHS
– Thomas Jefferson University
Panelist:
Kenneth I. Ataga, MD
– UTHSC Center for Sickle Cell Disease, Memphis, TN, USA
1:50 PM - 2:10 PM
ET
Milestones That Matter: The Evolution of Survival and Quality of Life in SCD
Location: Atlantic D
Speaker:
Sophie Lanzkron, M.D., MHS
– Thomas Jefferson University
2:10 PM - 2:30 PM
ET
Rewriting Blood: The Genetic Reset of Sickle Cell Disease Through Hematopoietic Stem Cell Transplant
Location: Atlantic D
Panelist:
Adetola Kassim, M.B.B.S, MS, FACP
– Vanderbilt University Medical Center
3:20 PM - 4:20 PM
ET
The Patient Symposium: Empowering Patients to Advance Sickle Cell Policy
3:20 PM - 4:20 PM
ET
The Patient Symposium: Empowering Patients to Advance Sickle Cell Policy
Location: Atlantic D
Chair:
Ashley Valentine, MRes
– Sick Cells
Co-Chair:
Melissa Akinlawon, MA
– Sick Cells
Speaker:
Fabienne Antoine-Nasser
4:20 PM - 4:50 PM
ET
Break
4:20 PM - 4:50 PM
ET
Break
4:50 PM - 6:15 PM
ET
Investigational New Drug, Device and Therapeutics Symposium
Chair:
Patrick C. Hines, M.D., Ph.D.
– Wayne State University School of Medicine, Detroit, MI, USA
Panelist:
E. Leila Jerome Clay, M.D., MCTS, FAAP
– Novo Nordisk Inc.
Panelist:
Cameron Trenor, MD
– Cellarity
Panelist:
Thomas Winkler, M.D.
– Fulcrum Therapeutics, Cambridge, MA, USA
Panelist:
Gregory J. Kato, M.D.
– CSL Behring
Panelist:
Ahmed Daak, MD, MSc, PhD, DPM, FFPM, EMBA
– Sanofi
Panelist:
Priya S. Chockalingam, PhD
– Beam Therapeutics
Panelist:
Michael Callaghan, M.D.
– Agios Pharmaceuticals
Panelist:
Oliver Shastri, MBBS MRCS
– Pfizer
4:50 PM - 6:15 PM
ET
Investigational New Drug, Device and Therapeutics Symposium
Location: Atlantic D
Chair:
Patrick C. Hines, M.D., Ph.D.
– Wayne State University School of Medicine, Detroit, MI, USA
Panelist:
E. Leila Jerome Clay, M.D., MCTS, FAAP
– Novo Nordisk Inc.
Panelist:
Cameron Trenor, MD
– Cellarity
Panelist:
Thomas Winkler, M.D.
– Fulcrum Therapeutics, Cambridge, MA, USA
Panelist:
Gregory J. Kato, M.D.
– CSL Behring
Panelist:
Ahmed Daak, MD, MSc, PhD, DPM, FFPM, EMBA
– Sanofi
Panelist:
Priya S. Chockalingam, PhD
– Beam Therapeutics
Panelist:
Michael Callaghan, M.D.
– Agios Pharmaceuticals
Panelist:
Oliver Shastri, MBBS MRCS
– Pfizer
4:50 PM - 4:55 PM
ET
Chair Welcome
Location: Atlantic D
Chair:
Patrick C. Hines, M.D., Ph.D.
– Wayne State University School of Medicine, Detroit, MI, USA
4:55 PM - 5:30 PM
ET
Company Introductions
Location: Atlantic D
Chair:
Patrick C. Hines, M.D., Ph.D.
– Wayne State University School of Medicine, Detroit, MI, USA
Panelist:
E. Leila Jerome Clay, M.D., MCTS, FAAP
– Novo Nordisk Inc.
Panelist:
Cameron Trenor, MD
– Cellarity
Panelist:
Thomas Winkler, M.D.
– Fulcrum Therapeutics, Cambridge, MA, USA
Panelist:
Gregory J. Kato, M.D.
– CSL Behring
Panelist:
Ahmed Daak, MD, MSc, PhD, DPM, FFPM, EMBA
– Sanofi
Panelist:
Priya S. Chockalingam, PhD
– Beam Therapeutics
Panelist:
Michael Callaghan, M.D.
– Agios Pharmaceuticals
Panelist:
Oliver Shastri, MBBS MRCS
– Pfizer
5:30 PM - 6:00 PM
ET
Moderated Fireside Chat with the Panel
Location: Atlantic D
Chair:
Patrick C. Hines, M.D., Ph.D.
– Wayne State University School of Medicine, Detroit, MI, USA
Panelist:
E. Leila Jerome Clay, M.D., MCTS, FAAP
– Novo Nordisk Inc.
Panelist:
Cameron Trenor, MD
– Cellarity
Panelist:
Thomas Winkler, M.D.
– Fulcrum Therapeutics, Cambridge, MA, USA
Panelist:
Gregory J. Kato, M.D.
– CSL Behring
Panelist:
Ahmed Daak, MD, MSc, PhD, DPM, FFPM, EMBA
– Sanofi
Panelist:
Priya S. Chockalingam, PhD
– Beam Therapeutics
Panelist:
Michael Callaghan, M.D.
– Agios Pharmaceuticals
Panelist:
Oliver Shastri, MBBS MRCS
– Pfizer
6:00 PM - 6:15 PM
ET
Open Q&A with the Audience
Location: Atlantic D
Chair:
Patrick C. Hines, M.D., Ph.D.
– Wayne State University School of Medicine, Detroit, MI, USA
Panelist:
E. Leila Jerome Clay, M.D., MCTS, FAAP
– Novo Nordisk Inc.
Panelist:
Cameron Trenor, MD
– Cellarity
Panelist:
Thomas Winkler, M.D.
– Fulcrum Therapeutics, Cambridge, MA, USA
Panelist:
Gregory J. Kato, M.D.
– CSL Behring
Panelist:
Ahmed Daak, MD, MSc, PhD, DPM, FFPM, EMBA
– Sanofi
Panelist:
Priya S. Chockalingam, PhD
– Beam Therapeutics
Panelist:
Michael Callaghan, M.D.
– Agios Pharmaceuticals
Panelist:
Oliver Shastri, MBBS MRCS
– Pfizer
6:15 PM - 7:30 PM
ET
Welcome Reception and Poster Session
6:15 PM - 7:30 PM
ET
Welcome Reception and Poster Session
Location: Exhibit Hall
Sponsored By
7:30 PM - 9:30 PM
ET
Hope in Action: An Inspiring Evening with Ryan Clark | Dinner Provided
7:30 PM - 9:30 PM
ET
Hope in Action: An Inspiring Evening with Ryan Clark | Dinner Provided
Location: Atlantic D
Patient Symposium Keynote:
Ryan Clark
Chair:
Raymona H. Lawrence, Dr.PH., MPH, CDE
– Foundation for Sickle Cell Disease Research
Co-Chair:
Nehemie Noel, MS-HCRM, BSHA, R.N., CHW
– Crisis 2 Crown International Inc.
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