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Full Schedule
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Friday, June 5, 2026
9:30 AM - 11:00 AM
ET
Special Symposium: Advancing Biomarkers in Sickle Cell Disease: Regulatory Pathways, Clinical Integration & Patient-Centered Endpoints
Chair:
Caterina Minniti, MD
– Albert Einstein College of Medicine, Bronx, NY, USA
9:30 AM - 11:00 AM
ET
Insights into Drug Development in Sickle Cell Disease
Location: Atlantic D
Chair:
Caterina Minniti, MD
– Albert Einstein College of Medicine, Bronx, NY, USA
9:35 AM - 9:50 AM
ET
Biomarkers as Endpoints in Sickle Cell Disease: What Are They and Why Are They Important?
Location: Atlantic D
Speaker:
Kenneth I. Ataga, MD
– UTHSC Center for Sickle Cell Disease, Memphis, TN, USA
9:50 AM - 10:05 AM
ET
FDA 101: Pathways to Biomarker Approval: A Strategy
Location: Atlantic D
Speaker:
Donna Whyte-Stewart
10:05 AM - 10:15 AM
ET
Patient-Centered Endpoints in Sickle Cell Disease
10:15 AM - 10:35 AM
ET
Industry Sponsor Perspectives Panel
Location: Atlantic D
Panelist:
Gregory J. Kato, MD
– CSL Behring
10:35 AM - 10:55 AM
ET
Panel Discussion & Audience Q&A
Location: Atlantic D
11:30 AM - 11:45 AM
ET
Welcome Address: The State of Sickle Cell Disease in the Golden Age & Celebrating 20 Years of The Symposium
11:30 AM - 11:45 AM
ET
Welcome Address: The State of Sickle Cell Disease in the Golden Age & Celebrating 20 Years of The Symposium
Location: Atlantic D
Speaker:
Lanetta Bronte, MD, MPH, MSPH
– The Foundation for Sickle Cell Disease Research
11:45 AM - 11:50 AM
ET
Introduction to the Access to Care Keynote Presentation
11:45 AM - 11:50 AM
ET
Introduction to the Access to Care Keynote Presentation
Location: Atlantic D
Speaker:
Kayvan Amini, DO, FACC
– South Florida Cardiology Consultants
11:45 AM - 12:45 PM
ET
Access to Care Keynote Presentation: Research and Real-World Impact in Sickle Cell Disease
11:50 AM - 12:45 PM
ET
Access to Care Keynote Presentation: Research and Real-World Impact in Sickle Cell Disease
Location: Atlantic D
Presenter:
Christopher Cogle, MD
– Florida Medicaid
12:45 PM - 1:15 PM
ET
Practical Tips to Make Your Clinical Trial Successful - for Participants, Clinical Research Staff and Investigators
12:45 PM - 1:15 PM
ET
Practical Tips to Make Your Clinical Trial Successful - for Participants, Clinical Research Staff and Investigators
Location: Atlantic D
Chair:
Susan P. Perrine, MD, SM
– Boston University Chobanian & Avedisian School of Medicine
Co-Chair:
Qin C. Ryan, MD, PhD
1:15 PM - 1:45 PM
ET
Exhibit Hall Welcome Coffee Break
1:15 PM - 1:45 PM
ET
Exhibit Hall Welcome Coffee Break
1:45 PM - 3:15 PM
ET
Historic Landmarks in Research and Care of Patients with Sickle Cell Disease
Panelist:
Wally R. Smith, MD
– Virginia Commonwealth University
Panelist:
Adetola Kassim, M.B.B.S, MS, FACP
– Vanderbilt University Medical Center
Panelist:
Sophie Lanzkron, MD, MHS
– Thomas Jefferson University
1:45 PM - 3:15 PM
ET
Historic Landmarks in Research and Care of Patients with Sickle Cell Disease
Location: Atlantic D
Panelist:
Wally R. Smith, MD
– Virginia Commonwealth University
Panelist:
Adetola Kassim, M.B.B.S, MS, FACP
– Vanderbilt University Medical Center
Panelist:
Sophie Lanzkron, MD, MHS
– Thomas Jefferson University
2:10 PM - 2:30 PM
ET
Rewriting Blood: The Genetic Reset of Sickle Cell Disease Through Hematopoietic Stem Cell Transplant
Location: Atlantic D
Panelist:
Adetola Kassim, M.B.B.S, MS, FACP
– Vanderbilt University Medical Center
3:20 PM - 4:20 PM
ET
The Patient Symposium: Empowering Patients to Advance Sickle Cell Policy
3:20 PM - 4:20 PM
ET
The Patient Symposium: Empowering Patients to Advance Sickle Cell Policy
Location: Atlantic D
Chair:
Ashley Valentine, MRes
– Sick Cells
Co-Chair:
Melissa Akinlawon, MA
– Sick Cells
4:20 PM - 4:50 PM
ET
Break
4:20 PM - 4:50 PM
ET
Break
4:50 PM - 6:15 PM
ET
Investigational New Drug, Device and Therapeutics Symposium
4:50 PM - 6:15 PM
ET
Investigational New Drug, Device and Therapeutics Symposium
Location: Atlantic D
Chair:
Patrick C. Hines, MD, PhD
– Wayne State University School of Medicine, Detroit, MI, USA
6:15 PM - 7:30 PM
ET
Welcome Reception and Poster Session
6:15 PM - 7:30 PM
ET
Welcome Reception and Poster Session
Location: Exhibit Hall
7:30 PM - 9:30 PM
ET
Adult, Child, and Caregiver Town Hall & Dinner Panel (RSVPs Required, intended for SCD patients and families)
7:30 PM - 9:30 PM
ET
Adult, Child, and Caregiver Town Hall & Dinner Panel (RSVPs Required, intended for SCD patients and families)
Location: Atlantic D
Chair:
Nehemie Noel, MS-HCRM, BSHA, RN, CHW
– Crisis 2 Crown International Inc.
8:30 PM - 5:30 PM
ET
Speaker Ready Room
Chair:
Caterina Minniti, MD
– Albert Einstein College of Medicine
8:30 PM - 5:30 PM
ET
Speaker Ready Room
Location: 253C
