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Full Schedule

Full Schedule

  • Thursday, June 4, 2026
  • 7:00 AM - 5:00 PM ET
    Registration Open
  • 1:00 PM - 5:00 PM ET
    Update on Stroke Prevention Strategies in Children with Sickle Cell Disease
  • Friday, June 5, 2026
  • 8:30 AM - 7:30 PM ET
    Registration Open
  • 9:30 AM - 11:00 AM ET
    Special Symposium: Advancing Biomarkers in Sickle Cell Disease: Regulatory Pathways, Clinical Integration & Patient-Centered Endpoints
    Chair: Caterina Minniti, MD – Albert Einstein College of Medicine, Bronx, NY, USA
    Speaker: Thomas Winkler, MD – Fulcrum Therapeutics, Cambridge, MA, USA
  • 11:30 AM - 11:45 AM ET
    Welcome Address: The State of Sickle Cell Disease in the Golden Age & Celebrating 20 Years of The Symposium
  • 11:45 AM - 11:50 AM ET
    Introduction to the Access to Care Keynote Presentation
  • 11:45 AM - 12:45 PM ET
    Access to Care Keynote Presentation: Research and Real-World Impact in Sickle Cell Disease
  • 12:45 PM - 1:15 PM ET
    Practical Tips to Make Your Clinical Trial Successful - for Participants, Clinical Research Staff and Investigators
  • 1:15 PM - 1:45 PM ET
    Exhibit Hall Welcome Coffee Break
  • 1:45 PM - 3:15 PM ET
    Historic Landmarks in Research and Care of Patients with Sickle Cell Disease
    Panelist: Wally R. Smith, MD – Virginia Commonwealth University
    Panelist: Adetola Kassim, M.B.B.S, MS, FACP – Vanderbilt University Medical Center
    Panelist: Sophie Lanzkron, MD, MHS – Thomas Jefferson University
  • 3:20 PM - 4:20 PM ET
    The Patient Symposium: Empowering Patients to Advance Sickle Cell Policy
  • 4:20 PM - 4:50 PM ET
    Break
  • 4:50 PM - 6:15 PM ET
    Investigational New Drug, Device and Therapeutics Symposium
    Chair: Patrick C. Hines, MD, PhD – Wayne State University School of Medicine, Detroit, MI, USA
  • 6:15 PM - 7:30 PM ET
    Welcome Reception and Poster Session
  • 7:30 PM - 9:30 PM ET
    Hope in Action: An Inspiring Evening with Ryan Clark | Dinner Provided
  • Saturday, June 6, 2026
  • 7:00 AM - 8:00 AM ET
    Attendee Breakfast
  • 7:00 AM - 5:30 PM ET
    Registration Open
  • 8:15 AM - 8:25 AM ET
    Welcome From The 2026 Scientific Chair
  • 8:25 AM - 9:40 AM ET
    Top Abstract Oral Presentations
    Moderator: Wally R. Smith, MD – Virginia Commonwealth University
  • 9:45 AM - 10:45 AM ET
    Scientific Keynote Presentation: Sickle Cell Disease as a Molecular Paradigm, from Discovery to Presicion Medicine
  • 10:45 AM - 11:00 AM ET
    Advances in Cardiopulmonary Complications of Sickle Cell Disease.
  • 11:00 AM - 12:30 PM ET
    Educational Session on Basic Science, Multi-Omics, and Red Cell Research: Historical Perspectives vs. New Initiatives in Sickle Cell Disease
  • 11:00 AM - 12:30 PM ET
    Educational Session on Behavioral and Mental Health in Sickle Cell Disease
  • 11:00 AM - 12:30 PM ET
    Educational Session on Clinical Endpoints in Sickle Cell Disease
    Chair: Caterina Minniti, MD – Albert Einstein College of Medicine, Bronx, NY, USA
  • 11:00 AM - 12:30 PM ET
    Educational Session on Genomics, and Bioethics in Sickle Cell Disease
  • 12:30 PM - 1:30 PM ET
    Exhibit Hall Lunch
  • 1:30 PM - 2:00 PM ET
    20 Years of Scientific Advancement in Sickle Cell Disease
  • 2:00 PM - 4:00 PM ET
    Dr. Kwaku "KOF" Ohene-Frempong East Meets West Global Sickle Cell Disease Symposium
  • 4:00 PM - 4:15 PM ET
    Exhibit Hall Coffee Break
  • 4:15 PM - 4:30 PM ET
    FSCDR Basic Science Sickle Cell Scholar Presentation
  • 4:30 PM - 5:30 PM ET
    The Nursing Symposium - Advanced Practice Providers as Sickle Cell Specialists: What are the most effective models of care?
  • 5:30 PM - 6:30 PM ET
    Break
  • 6:30 PM - 8:30 PM ET
    FSCDR's Presidential Dinner and Live Show with The Valerie Tyson Band - All Invited!
  • Sunday, June 7, 2026
  • 7:00 AM - 8:00 AM ET
    Attendee Breakfast
  • 7:00 AM - 1:00 PM ET
    Registration Open
  • 8:15 AM - 8:25 AM ET
    Welcome from the 2027 Scientific Chair
  • 8:25 AM - 8:40 AM ET
    Update on Stroke Prevention Strategies in Children with Sickle Cell Disease
  • 8:40 AM - 9:40 AM ET
    2026 FSCDR Sickle Cell Pain Symposium: A Holistic View of Pain in Sickle Cell Disease: Mechanisms and Treatment Approaches, Session 1
  • 9:40 AM - 10:00 AM ET
    Exhibit Hall Coffee Break
  • 10:00 AM - 11:00 AM ET
    2026 FSCDR Sickle Cell Pain Symposium: A Holistic View of Pain in Sickle Cell Disease: Mechanisms and Treatment Approaches, Session 2
  • 11:00 AM - 11:30 AM ET
    2026 FSCDR Sickle Cell Pain Symposium: A Holistic View of Pain in Sickle Cell Disease: Mechanisms and Treatment Approaches, Q&A
  • 12:00 PM - 1:00 PM ET
    Foundation Keynote Presentation: The Hero's Journey
  • 1:00 PM - 1:30 PM ET
    Viola Davis Meet & Greet (Ticketed Event)
  • 1:00 PM - 2:00 PM ET
    Exhibit Hall Lunch
  • 2:00 PM - 2:15 PM ET
    Journavx (Suzetrigine) and Emerging Nonopioid Approaches to Acute Sickle Cell Pain
  • 2:15 PM - 3:45 PM ET
    Oral Abstract Breakout Session I Basic Science / Translational
  • 2:15 PM - 3:45 PM ET
    Oral Abstract Breakout Session I Clinical Trials
  • 2:15 PM - 3:45 PM ET
    Oral Abstract Breakout Session I Health Services
  • 4:30 PM - 6:00 PM ET
    Oral Abstract Breakout Session II Clinical / Translational
  • 4:30 PM - 6:00 PM ET
    Oral Abstract Breakout Session II Health Services/Quality Improvement
  • 4:30 PM - 6:00 PM ET
    Oral Abstract Breakout Session II Psychosocial