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Novo Nordisk


Full Schedule

Full Schedule

  • Thursday, June 4, 2026
  • 7:00 AM - 5:00 PM ET
    Registration Open
  • 7:00 AM - 5:45 PM ET
    Grant Writing Institute (GWI)
  • 1:00 PM - 5:00 PM ET
    Update on Stroke Prevention Strategies in Children with Sickle Cell Disease and Engagement Workshop
    Chair: Philipp Aldana, MD – Nemours Children’s Health/ Wolfson Children’s Hospital Jacksonville.
    Speaker: Laura Lehman, MD, MPH – Boston Children's Hospital/Harvard Medical School
    Speaker: (Alfred) Pokmeng See, MD – Boston Children's Hospital, Harvard University
    Speaker: Manisha Bansal, MD MS – Nemours Children’s Health
  • Friday, June 5, 2026
  • 8:00 AM - 9:00 AM ET
    Attendee Breakfast
  • 8:30 AM - 7:30 PM ET
    Registration Open
  • 9:30 AM - 11:00 AM ET
    Special Symposium: Advancing Biomarkers in Sickle Cell Disease: Regulatory Pathways, Clinical Integration & Patient-Centered Endpoints

    Chair: Caterina P. Minniti, MD – Albert Einstein College of Medicine, Bronx, NY, USA

  • 11:00 AM - 11:45 AM ET
    Welcome Address: The State of Sickle Cell Disease in the Golden Age & Celebrating 20 Years of The Symposium
  • 11:45 AM - 11:50 AM ET
    Introduction to the Access to Care Keynote Presentation
  • 11:45 AM - 12:45 PM ET
    Access to Care Keynote Presentation: Research and Real-World Impact in Sickle Cell Disease
  • 1:00 PM - 7:30 PM ET
    Exhibit Hall Open
  • 1:15 PM - 1:45 PM ET
    Welcome Coffee Break in Exhibit Hall
  • 1:45 PM - 3:15 PM ET
    Historic Landmarks in Research and Care of Patients with Sickle Cell Disease
    Chair: Wally R. Smith, M.D. – Virginia Commonwealth University
    Speaker: Adetola Kassim, M.B.B.S, M.S., FACP – Vanderbilt University Medical Center
    Speaker: Sophie Lanzkron, M.D., MHS – Thomas Jefferson University
     Earn 1.5 CME Hour(s)
  • 3:15 PM - 3:20 PM ET
    Break
  • 3:20 PM - 4:20 PM ET
    The Patient Symposium: Empowering Patients to Advance Sickle Cell Policy

    Chair: Ashley Valentine, MRes – Sick Cells

    Co-Chair: Melissa Akinlawon, MA – Sick Cells

    Speaker: Fabienne Antoine-Nasser

  • 4:20 PM - 4:50 PM ET
    Break
  • 4:50 PM - 6:15 PM ET
    Investigational New Drug, Device and Therapeutics Symposium
    Chair: Patrick C. Hines, M.D., Ph.D. – Wayne State University School of Medicine, Detroit, MI, USA
    Panelist: E. Leila Jerome Clay, M.D., MCTS, FAAP – Novo Nordisk Inc.
    Panelist: Cameron Trenor, MD – Cellarity
    Panelist: Gregory J. Kato, M.D. – CSL Behring
    Panelist: Priya S. Chockalingam, PhD – Beam Therapeutics
    Panelist: Michael Callaghan, M.D. – Agios Pharmaceuticals
    Panelist: Jeremy Rupon, MD, PhD – Pfizer
  • 6:15 PM - 7:30 PM ET
    Welcome Reception and Poster Session in Exhibit Hall
  • 7:30 PM - 9:30 PM ET
    Hope in Action: An Inspiring Evening with Ryan Clark | Dinner Provided
  • Saturday, June 6, 2026
  • 7:00 AM - 8:00 AM ET
    Attendee Breakfast
  • 7:00 AM - 8:00 AM ET
    Product Theater & Breakfast
  • 7:00 AM - 5:30 PM ET
    Registration Open
  • 8:15 AM - 8:25 AM ET
    Welcome From The 2026 Scientific Chair
  • 8:25 AM - 9:40 AM ET
    Top Abstract Oral Presentations
    Moderator: Wally R. Smith, M.D. – Virginia Commonwealth University
     Earn 1.5 CME Hour(s)
  • 9:30 AM - 5:00 PM ET
    Exhibit Hall Open
  • 9:45 AM - 10:45 AM ET
    Scientific Keynote Presentation: Sickle Cell Disease as a Molecular Paradigm, from Discovery to Gene Therapy
  • 10:45 AM - 11:00 AM ET
    Advances in Cardiopulmonary Complications of Sickle Cell Disease.
  • 11:00 AM - 12:30 PM ET
    Educational Session on Clinical Endpoints in Sickle Cell Disease
    Chair: Caterina P. Minniti, MD – Albert Einstein College of Medicine, Bronx, NY, USA
  • 11:00 AM - 12:30 PM ET
    Educational Session on Genomics, and Bioethics in Sickle Cell Disease
  • 11:00 AM - 12:30 PM ET
    Educational Session on Initiatives in Sickle Cell: From Bench to Bedside
  • 11:00 AM - 12:30 PM ET
    Educational Session: From Recognition to Integration: 20 Years of Progress in Behavioral and Mental Health in Sickle Cell Disease

    Chair: Kofi A. Anie, Ph.D. – London North West University Healthcare NHS Trust and Imperial College London

    Speaker: Jerlym S. Porter, PhD, MPH – St. Jude Children's Research Hospital

    Speaker: Lori E. Crosby, PsyD – Cincinnati Children's Hospital Medical Center

  • 12:30 PM - 1:30 PM ET
    Lunch in Exhibit Hall
  • 12:30 PM - 1:30 PM ET
    Product Theaters & Lunch
  • 1:30 PM - 2:00 PM ET
    20 Years of Scientific Advancement in Sickle Cell Disease
  • 2:00 PM - 4:00 PM ET
    Dr. Kwaku "KOF" Ohene-Frempong East Meets West Global Sickle Cell Disease Symposium
    Chair: Isaac Odame, M.B. ChB, MRCP (UK), FRCPCH, FRCPath, FRCPC – The Hospital for Sick Children
    Co-Chair: Andrew D. Campbell, M.D. – Children's National Hospital
    Speaker: John James, OBE – Sickle Cell Society
    Speaker: Tarun Aurora, M.D., MSCI – Emory University
    Speaker: Cheedy Jaja, Ph.D., MPH, MSN, M.N., PMHNP-BC, APRN, FAAN – University of South Florida
    Speaker: Baba Psalm Duniya Inusa, MD – King’s College London
    Speaker: Ofelia A. Alvarez, MD – University of Miami
  • 4:00 PM - 4:30 PM ET
    Coffee Break in Exhibit Hall
  • 4:30 PM - 5:30 PM ET
    The Nursing Symposium - Advanced Practice Providers as Sickle Cell Specialists: What are the most effective models of care?
  • 5:30 PM - 6:00 PM ET
    Practical Tips to Make Your Clinical Trial Successful - for Participants, Clinical Research Staff and Investigators
  • 6:00 PM - 6:30 PM ET
    Break
  • 6:30 PM - 8:30 PM ET
    FSCDR's Presidential Dinner Reception and Live Show with The Valerie Tyson Band - All Invited!
  • Sunday, June 7, 2026
  • 7:00 AM - 8:00 AM ET
    Attendee Breakfast
  • 7:00 AM - 1:00 PM ET
    Registration Open
  • 8:15 AM - 8:35 AM ET
    Welcome From The 2027 Scientific Chair
  • 8:35 AM - 8:50 AM ET
    Update on Stroke Prevention Strategies in Children with Sickle Cell Disease
  • 8:50 AM - 9:50 AM ET
    2026 FSCDR Sickle Cell Pain Symposium: A Holistic View of Pain in Sickle Cell Disease: Mechanisms and Treatment Approaches, Session 1
    Chair: Wally R. Smith, M.D. – Virginia Commonwealth University
    Co-Chair: Kalpna Gupta, Ph.D. – UC Irvine, Division of Hematology/Oncology, Department of Medicine
     Earn 1 CME Hour(s)
  • 9:30 AM - 2:00 PM ET
    Exhibit Hall Open
  • 9:50 AM - 10:00 AM ET
    Coffee Break in Exhibit Hall
  • 10:00 AM - 11:00 AM ET
    2026 FSCDR Sickle Cell Pain Symposium: A Holistic View of Pain in Sickle Cell Disease: Mechanisms and Treatment Approaches, Session 2
    Chair: Wally R. Smith, M.D. – Virginia Commonwealth University
    Co-Chair: Kalpna Gupta, Ph.D. – UC Irvine, Division of Hematology/Oncology, Department of Medicine
     Earn 1 CME Hour(s)
  • 11:00 AM - 11:30 AM ET
    2026 FSCDR Sickle Cell Pain Symposium: A Holistic View of Pain in Sickle Cell Disease: Mechanisms and Treatment Approaches, Q&A
  • 11:30 AM - 12:00 PM ET
    Coffee Break in Exhibit Hall
  • 12:00 PM - 1:00 PM ET
    Foundation Keynote Presentation: The Hero's Journey
  • 1:00 PM - 1:30 PM ET
    Viola Davis Meet & Greet (Ticketed Event)
  • 1:00 PM - 1:45 PM ET
    Lunch in Exhibit Hall
  • 2:00 PM - 2:15 PM ET
    Journavx (Suzetrigine) and Emerging Nonopioid Approaches to Acute Sickle Cell Pain
  • 2:15 PM - 3:15 PM ET
    Oral Abstract Breakout Session I Clinical / Translational
    Moderator: Elnara Fazio-Eynullayeva, MA – Novo Nordisk
  • 2:15 PM - 3:45 PM ET
    Oral Abstract Breakout Session I Health Services
    Moderator: Anjulika Chawla, M.D., FAAP – Genetix Biotherapeutics
  • 2:15 PM - 4:00 PM ET
    Oral Abstract Breakout Session I Basic Science / Translational
    Moderator: Li Yang, Ph.D. – Translational Biobehavioral and Health Promotion Branch, Clinical Center, National Institutes of Health
  • 2:15 PM - 4:00 PM ET
    Oral Abstract Breakout Session I Clinical Trials
    Moderator: Sheinei S. Alan, M.D. – UVA School of Medicine, Inova Campus, Fairfax, VA, USA; and Inova Adult Sickle Cell Program, Inova Healath System, Fairfax, VA, USA
  • 4:00 PM - 4:30 PM ET
    Break
  • 4:30 PM - 5:15 PM ET
    Oral Abstract Breakout Session II Clinical / Translational
    Moderator: Stephanie Wildridge, R.N., BSN – NIH Clinical Center, Translational Biobehavioral and Health Promotions,
  • 4:30 PM - 5:45 PM ET
    Oral Abstract Breakout Session II Psychosocial
  • 4:30 PM - 6:00 PM ET
    Oral Abstract Breakout Session II Health Services/Quality Improvement
    Moderator: Kenneth A. Rivlin, MD, PhD – NYC Health + Hospitals / Jacobi